Not Home Screens in Philadelphia

Not Home Screens in PhiladelphiaEssie

Philadelphia parents and disability rights activists will grapple with the shocking issue of medically fragile children living in institutions instead of at home with the screening of the new documentary Not Home: A documentary about kids living in nursing facilities, Thursday, May 2nd. at 1PM at the Scribe Video Center.

New rules set in place by Pennsylvania’s Department of Public Welfare’s “Fair Share” initiative are designed to cut crucial services that parents feel help keep children with a disability at home and in the community. According to the Age of Autism, parents are now being required by DPW to contribute up to 5% of their gross income for “wraparound” services like behavior therapy, speech, occupational and physical therapies, medications, doctor’s visits and more.

Scribe Video Center is located at 4212 Chestnut Street in Philadelphia. The screening is being sponsored by the Department of Behavioral Health and Intellectual disability Services and the Philadelphia Intellectual disability Services.

Seating is limited. Please register by April 26th by calling 215-685-5980 or email annmarie.campbell@phila.gov

Not Home Screens in San Jose

Monday, March 18, 2013
Doors Open at 6:30 PM
Film Screening at 7:00 PM
Panel Discussion at 8:30 PM
Program Ends at 9:00 PM
Location:
Silicon Valley Independent Living Center
2202 N. First St, San Jose, CA 95131
FREE ADMISSION
Please register at www.svilc.org
or call SVILC at 408-894-9041 (Voice) or
408-894-9012 (TTY)

Not Home Screens at UC Berkeley

Narcel Reedus’s documentary “Not at Home” will be shown on Tuesday March 19, 5pm, with a talk by the filmmaker, at UC Berkeley, 300 Wheeler Hall (Media Room). The documentary follows four people, two young people and two parents, exploring how parents of medically-fragile children (especially but not exclusively in poor families, many of them families of color) feel forced to make the decision to institutionalize their child because some states disproportionately allocate funding for brick and mortar institutions rather than the less expensive home and community based living. Sponsored by UCB’s Disability Studies Research Cluster, Diversity and Health Disparities Research Cluster, and Dean Christopher Edley, Berkeley Law School. Wheelchair accessible. For disability accommodation, contact sschweik@berkeley.edu

http://www.nothomedocumentary.com

One of the young people featured in the film died last month:

http://www.npr.org/blogs/health/2013/01/15/169457118/why-a-young-man-died-in-a-nursing-home-a-state-away-from-his-mom

Not Home Screens at Abilities Expo LA

Saturday, March 16th 2:30pm – 3:30pm
Los Angeles Convention Center
West Hall A
1201 South Figueroa Street
Los Angeles, CA 90015

Screening of “Not Home” A Documentary About Kids Living In Nursing Facilities

Presented by Narcel Reedus, Director
Can you imagine how a child feels growing up in a nursing home? Celebrating Christmas, birthdays and other milestones alongside elderly bedridden patients is the mainstay for thousands of children with a developmental disability throughout America. Award-winning filmmaker, Narcel Reedus, reveals the stories of children growing up without a childhood in the heart-felt documentary, “Not Home.” Abilities Expo is pleased to screen a portion of this 99-minute film that examines the complex national phenomenon of children living in nursing homes and state-run institutions. Often times parents of medically-fragile children feel forced to make the decision to institutionalize their child because some states disproportionately allocate funding for brick and mortar institutions rather than the less expensive home and community based living. Time for questions and answers will be available following the session. Learn more at www.nothomedocumentary.com. A limited number of DVD’s will be available for purchase following the screening.

http://www.abilitiesexpo.com/losangeles/index.html

Not Home: A documentary about kids living in nursing facilities is an official selection of the North Carolina Black Film Festival March 14-17, 2013 in Wilmington, NC. In its 12th year, the four day juried and invitational festival of independent motion pictures by African-American filmmakers will showcase features, shorts, animation, and documentary films at Cameron Art Museum on Thursday and Sunday; Friday at UNCW Warwick Center, and Saturday at the Hannah Block USO Community Arts Center on Saturday.

Not Home: A Documentary About Kids Living inNursing Facilities Saturday March 16th 12:30pm
Community Arts Center

120 South 2nd Street
Wilmington, NC 28401

Not Home: A documentary about kids living in nursing facilities is a 99-minute feature documentary by director Narcel Reedus. The documentary focuses on four interweaving stories: Mathew, Qualeigh, Essie Evans and Nola Sayne – a young adult, a child and two parents whose separate lives intersect through the institutionalization of children with a developmental disability. In between each story are interviews from advocates, activists, elected officials and other parents facing similar challenges as well as a graphic montage of the condensed history of institutionalization in the U.S.

Prizes of $500 will be awarded in each category. Opening night tickets are $10; otherwise admission is $5 per screening block and $25 for ALL-ACCESS festival passes.

North Carolina Black Film Festival March 14-17, 2013 in Wilmington, NC. In its 12th year, the four day juried and invitational festival of independent motion pictures by African-American filmmakers will showcase features, shorts, animation, and documentary films at Cameron Art Museum on Thursday and Sunday; Friday at UNCW Warwick Center, and Saturday at the Hannah Block USO Community Arts Center on Saturday. Prizes of $500 will be awarded in each category. Opening night tickets are $10; otherwise admission is $5 per screening block and $25 for ALL-ACCESS festival passes.

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Not Home Screens at Abilities Expo Atlanta

Screening of “Not Home” A Documentary About Kids Living In Nursing Facilities

Presented by Narcel Reedus, Director

Special Guest Speaker Mathew Harp

Abilities Expo  is pleased to screen a 30 minute excerpt from Not Home: A documentary about kids living in nursing facilities on Saturday, February 9th from 2:30pm-3:30pm at the Georgia World Congress Center Hall C. Not Home examines the complex national phenomenon of children living in nursing homes and state-run institutions.  Mathew Harp, a young man featured in the documentary, will be the guest speaker.

Can you imagine how a child feels growing up in a nursing home? Celebrating Christmas, birthdays and other milestones alongside elderly bedridden patients is the mainstay for thousands of children with a developmental disability throughout America. Award-winning filmmaker, Narcel Reedus, reveals the stories of children growing up without a childhood in the heart-felt documentary, “Not Home.”

Often times parents of medically-fragile children feel forced to make the decision to institutionalize their child because some states disproportionately allocate funding for brick and mortar institutions rather than the less expensive home and community based living. Time for questions and answers will be available following the session. Learn more at www.nothomedocumentary.com. A limited number of DVD’s will be available for purchase following the screening.

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Not Home Screening in Virginia

The Not Home documentary filmed by award-winning independent filmmaker Narcel Reedus, will screen in Norfolk, VA on Saturday, August 11 at the Endependence Center at 6300 E. Virginia Beach Blvd. This event is free and open to the public.

The 99-minute documentary chronicles the complex national phenomenon of children with developmental disabilities living in nursing facilities and state run institutions. This masterfully crafted documentary includes poignant interviews from parents, advocates, activists and elected officials and also provides a condensed history of institutionalization in the U.S. The footage for the documentary extends over many states as it reveals a common correlation between the families. The documentary features the story of Qualeigh a young boy from Norfolk, VA. who spent the first six years of his life living in Lake Taylor.

Narcel Reedus is one of our nation’s most beloved independent filmmakers. His documentary will become a catalyst for educating people from all walks of life about the evolving socioeconomic hardship and obstacles parents’ face while caring for a child with a developmental disability. According to Reedus, “The stories in Not Home unfold with a mixture of interviews and vérité footage including homecomings, doctor visits, circles of support meetings, and travels with a parent on a visit to a long-term pediatric care facility. There are four interweaving stories: Mathew, Qualeigh, Essie Evans and Nola Sayne – a young adult, a child and two parents whose separate lives intersect through institutionalization. With these stories we hope to reveal incredible threads of commonality that cross community, race, and class.”

Reedus’ previous work includes the award-winning short documentary Waddie Welcome, regarded by many as an influential film in the disability rights community. The filmmaker hopes the Not Home documentary will encourage, enlighten and engage a nation to create dialogue for change. The screening at the Endependence Center will be followed by a question and answer session with the director Narcel Reedus and a panel of special guests including Norfolk area parents and activists featured in the documentary.

Join filmmaker Narcel Reedus for a special screening of this film, at the Endependence Center at 6300 E. Virginia Beach Blvd at 6:00pm on Saturday, August 1th.

In addition to the screenings, the Not Home Documentary will be available on DVD as well as book format. Learn more about the new independent documentary, Not Home, at the movie’s website at http://www.NotHomeDocumentary.com/. Follow the documentary’s updates on Twitter at https://twitter.com/#!/NotHomeDoc.

Website: http://www.NotHomeDocumentary.com/
Facebook: http://www.facebook.com/NotHomeDocumentary
Twitter: https://twitter.com/#!/NotHomeDoc

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DOJ Letter to Florida

Fl. Att. General Pamela Bondi & Gov. Rick Scott

“Our review of the State’s system reveals that the State fails to meet its obligations under Title II of the ADA and its implementing regulations, 28 C.F.R. Part 35, by unnecessarily institutionalizing hundreds of children with disabilities in nursing facilities.”

DOWNLOAD the Complete DOJ Letter to Florida

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Illinois Medically Fragile & Technology Dependent Children’s Waiver Extended

Attorney Robert H. Farley, Jr. of Naperville, Illinois appeared before Federal Judge Robert W. Gettleman on July 18, 2012 concerning the class action lawsuit filed on behalf of medically fragile children in the State of Illinois.  The lawyer for the State told Judge Gettleman that there was no need to proceed on the Motion for Temporary Restraining Order and Preliminary Injunction as the State of Illinois had requested the federal government for a 90 day extension of the current existing medically fragile waiver to November 29, 2012.  Accordingly, there will be no reduction or elimination of Medicaid benefits in the near future to medically fragile children.  Judge Gettleman continued the Motion for Injunctive Relief to August 17, 2012.

Families of kids on the MFTD waiver have won their most immediate demand, an extension of the waiver.

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